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For many people, a medical procedure is just another appointment. For those living with chronic illness, it's days of planning, preparation, anxiety, and recovery. The procedure may only last an hour, but the invisible work surrounding it can be overwhelming.

Pain isn't always the hardest part of chronic illness. Sometimes it's the endless repetition of days that all look the same. In this week's Patient Perspectives, a young woman shares the hidden emotional toll of losing work, hobbies, independence, and the vibrant life she once loved and the hope that others might share how they keep moving forward.

Living with chronic illness isn't just about managing symptoms, it's also about grieving the life you thought you'd have. In this heartfelt Patient Perspective, one patient shares the hidden loss of identity that can come with chronic illness, while our physician perspective explains why this grief is real, valid, and an often-overlooked part of healing.

Florida's summer heat can be challenging for anyone, but when the heat index climbs to 110°F, it can be especially difficult for people living with autoimmune diseases. Learn why extreme heat can worsen symptoms like fatigue, joint pain, and dizziness, and discover practical strategies to stay cool, protect your health, and safely enjoy life in the Sunshine State.

For many people with hypermobile Ehlers-Danlos syndrome (hEDS), a simple car ride is anything but simple. The constant movement, prolonged sitting, and physical demands of staying stable can lead to pain, fatigue, dizziness, and lingering soreness. In this Patient Perspectives article, one patient shares their firsthand experience, while Dr. Shubha Kollampare explains why travel can be so challenging and offers practical strategies to help make every journey a little more man

Most people prepare for a special event by choosing an outfit or making travel plans. People living with chronic illness often prepare very differently. From carefully managing energy and symptoms to weighing whether the recovery afterward will be worth the experience, simply "showing up" can require days of planning. In this week's Patient Perspectives, we explore the invisible work behind life's special moments and why a little understanding can make all the difference.

What helps when you're living with chronic pain? In this Patient Perspectives article, one patient shares the approaches that help her cope physically and mentally, including self-care, rest, hydration, and a mindset focused on what remains possible rather than what has been lost.

Being an ally to disabled people requires more than good intentions. In this powerful Patient Perspectives article, a member of our chronic illness community shares what true allyship looks like, from listening and advocating to challenging ableism and improving accessibility. Learn how small actions can create a more inclusive and supportive world for people living with disabilities and chronic illness.

Chronic illness doesn't just change your body, it changes your relationships, your routines, and the future you once imagined. In this heartfelt Patient Perspectives article, one patient shares the often-unspoken grief of saying no to activities they love, watching invitations disappear, and navigating the loneliness that can come with living day-to-day. If you've ever mourned the life you thought you would live, you're not alone.

Chronic illness fatigue is more than feeling tired. This powerful patient perspective shares what it’s like to live with the constant, full-body exhaustion that comes with chronic illness, When rest never truly feels restorative and even simple daily tasks require immense effort.

Many people living with POTS are told to “just get more rest,” but for many patients, sleep itself can become part of the struggle. In this Living Radiantly: Patient Perspectives article, we explore the often-overlooked connection between POTS, fatigue, and sleep disturbances and the emotional toll of never truly feeling rested.

Living with POTS in the summer can feel less like “Hot Girl Summer” and more like survival mode. In this Patient Perspectives article, one writer shares the reality of heat intolerance, symptom flares, hydration struggles, and the small strategies that help make difficult days a little more manageable.

Living with neurodivergence and hypermobility can feel like a constant tension between what your mind expects and what your body can handle. In this patient perspective, we explore the reality of navigating daily life, managing flare-ups, and learning to listen to your body in a world that moves faster than you can.

Welcome to our new weekly blog where hear from our patients about living with an autoimmune disease.